Deinstitutionalisation

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This article is about the replacement of psychiatric hospitals. For the replacement of orphanages, see Deinstitutionalisation (orphanages and children's institutions).
Deinstitutionalisation (or deinstitutionalization) is the process of replacing long-stay psychiatric hospitals with less isolated community mental health services for those diagnosed with a mental disorder or developmental disability. Deinstitutionalisation works in two ways: the first focuses on reducing the population size of mental institutions by releasing patients, shortening stays, and reducing both admissions and readmission rates; the second focuses on reforming mental hospitals' institutional processes so as to reduce or eliminate reinforcement of dependency, hopelessness, learned helplessness, and other maladaptive behaviours.[1]
According to psychiatrist Leon Eisenberg, deinstitutionalisation has been an overall benefit for most psychiatric patients, though many have been left homeless and without care.[2] The deinstitutionalisation movement was initiated by three factors:
  • A socio-political movement for community mental health services and open hospitals;
  • The advent of psychotropic drugs able to manage psychotic episodes;
  • A financial imperative to shift costs from state to federal budgets.[2]
According to American psychiatrist Loren Mosher, most deinstitutionalization in the USA took place after 1972, as a result of the availability of SSI, long after the antipsychotic drugs were used universally in state hospitals.[3]
According to psychiatrist and author Thomas Szasz, deinstitutionalisation is the policy and practice of transferring homeless, involuntarily hospitalised mental patients from state mental hospitals into many different kinds of de facto psychiatric institutions funded largely by the federal government. These federally subsidised institutions began in the United States and were quickly adopted by most Western governments. The plan was set in motion by the Community Mental Health Act as a part of John F. Kennedy's legislation[clarification needed] and passed by the U.S. Congress in 1963, mandating the appointment of a commission to make recommendations for "combating mental illness in the United States".[4]
In many cases the deinstitutionalisation of the mentally ill in the Western world from the 1960s onward has translated into policies of "community release". Individuals who previously would have been in mental institutions are no longer continuously supervised by health care workers. Some experts, such as E. Fuller Torrey, have considered deinstitutionalisation to be a failure,[5] while some consider many aspects of institutionalization to have been worse.

Origins[edit]

19th century[edit]

The 19th century saw a large expansion in the number and size of asylums in Western industrialised countries. Although initially based on principles of moral treatment, they became overstretched, non-therapeutic, isolated in location, and neglectful of patients.[6]

20th century[edit]

By the beginning of the 20th century, increasing admissions had resulted in serious overcrowding, causing many problems for psychiatric institutions. Funding was often cut, especially during periods of economic decline and wartime. Asylums became notorious for poor living conditions, lack of hygiene, overcrowding, ill-treatment, and abuse of patients; many patients starved to death.[7]
The first community-based alternatives were suggested and tentatively implemented in the 1920s and 1930s, although asylum numbers continued to increase up to the 1950s. The movement for deinstitutionalisation moved to the forefront in various countries during the 1950s and 1960s with the advent of chlorpromazine and other antipsychotic drugs.
The prevailing public arguments, time of onset, and pace of reforms varied by country.[7] In the United States, class action lawsuits and the scrutiny of institutions through disability activism and antipsychiatry helped expose poor conditions and treatment. Sociologists and others argued that such institutions maintained or created dependency, passivity, exclusion, and disability, which caused people to remain institutionalised. Rosenhan's experiment in 1973 "accelerated the movement to reform mental institutions and to deinstitutionalize as many mental patients as possible."[8]
A prevailing argument claimed that community services would be cheaper and that new psychiatric medications made it more feasible to release people into the community.[9] Mental health professionals, public officials, families, advocacy groups, public citizens, and unions held differing views on deinstitutionalisation.[10]
A key text in the development of deinstitutionalisation was Asylums by Erving Goffman.[11]

Consequences[edit]

Community services that developed include supportive housing with full or partial supervision and specialised teams (such as assertive community treatment and early intervention teams). Costs have been reported as generally equivalent to inpatient hospitalisation, even lower in some cases (depending on how well or poorly funded the community alternatives are).[7]
Although deinstitutionalisation has been positive for the majority of patients, it also has severe shortcomings.[12] Expectations that community care would lead to fuller social integration have not been achieved; many remain without work, have limited social contacts, and often live in sheltered environments.[13]
New community services are often uncoordinated and unable to meet complex needs. Services in the community sometimes isolate the mentally ill within a new ghetto, where service users meet each other but have little contact with the rest of the public community. It has been said that instead of "community psychiatry", reforms established a "psychiatric community".[7]
Existing patients are often discharged without sufficient preparation or support. A greater proportion of people with mental disorders become homeless or go to prison.[7] Families can often play a crucial role in the care of those who would typically be placed in long-term treatment centres. However, many mentally ill people are resistant to such help due to the nature of their conditions. The majority of those who would be under continuous care in long-stay psychiatric hospitals are paranoid and delusional to the point that they refuse help, believing they do not need it, which makes it difficult to treat them.[14]

Violence[edit]

Victimisation[edit]

Moves to community living and services have led to various concerns and fears, from both the individuals themselves and other members of the community. Over a quarter of individuals accessing community mental health services in a US inner-city area are victims of at least one violent crime in a year, a proportion eleven times higher than the inner-city average. The elevated victim rate holds for every category of crime, including rape/sexual assault, other violent assaults, and personal and property theft. Victimisation rates are similar to those with developmental disabilities.[15][16]

Misconceptions[edit]

Despite perceptions by the public and media that people with mental disorders released into the community are more likely to be dangerous and violent, a large study indicated that those without substance abuse symptoms are no more likely to commit violence than others without substance abuse symptoms in their neighborhoods, which were usually economically deprived and high in substance abuse and crime. The study also reported that a higher proportion of the patients than of the others in the neighborhoods reported symptoms of substance abuse.[17]
Findings on violence committed by those with mental disorders in the community have been inconsistent and related to numerous factors; a higher rate of more serious offences such as homicide have sometimes been found but, despite high-profile homicide cases, the evidence suggests this has not been increased by deinstitutionalisation.[18][19][20] The aggression and violence that does occur, in either direction, is usually within family settings rather than between strangers.[21]

Worldwide[edit]

Asia[edit]

Hong Kong[edit]

In Hong Kong, a number of residential care services such as half-way houses, long-stay care homes, supported hostels are provided for the discharged patients. In addition, community support services such as rehabilitation day services and mental health care have been launched to facilitate the patients' re-integration into the community.

Japan[edit]

In Japan, the number of hospital beds has risen steadily over the last few decades.[7]

New Zealand[edit]

New Zealand established a reconciliation initiative in 2005 to address the ongoing compensation payouts to ex-patients of state-run mental institutions in the 1970s to 1990s. A number of grievances were heard, including: poor reasons for admissions; unsanitary and overcrowded conditions; lack of communication to patients and family members; physical violence and sexual misconduct and abuse; inadequate mechanisms for dealing with complaints; pressures and difficulties for staff, within an authoritarian hierarchy based on containment; fear and humiliation in the misuse of seclusion; over-use and abuse of ECT, psychiatric medications, and other treatments as punishments, including group therapy, with continued adverse effects; lack of support on discharge; interrupted lives and lost potential; and continued stigma, prejudice, and emotional distress and trauma.
There were some references to instances of helpful aspects or kindnesses despite the system. Participants were offered counselling to help them deal with their experiences, along with advice on their rights, including access to records and legal redress.[22]

Africa[edit]

Uganda has one psychiatric hospital.[7]

Europe[edit]

In some countries[specify] where deinstitutionalisation has occurred, "re-institutionalisation", or relocation to different institutions, has begun, as evidenced by increases in the number of supported housing facilities, forensic psychiatric beds, and the growing prison population.[23]
Some developing European countries[specify] still rely on asylums.

Italy[edit]

See also: Psychiatric reform in Italy
Italy was the first country to begin the deinstitutionalisation of mental health care and to develop a community-based psychiatric system.[24] The Italian system served as a model of effective service and paved the way for deinstitutionalisation of mental patients.[24] In 1978, the Basaglia Law had started Italian psychiatric reform that resulted in the end of the Italian state mental hospital system in 1998.[25]
The reform was focused on the gradual dismantlement of psychiatric hospitals, which required an effective community mental health service.[26]:665 The object of community care was to reverse the long-accepted practice of isolating the mentally ill in large institutions and to promote their integration in a socially stimulating environment, while avoiding subjecting them to excessive social pressures.[26]:664

United Kingdom[edit]

See also: Care in the community

North America[edit]

United States[edit]

The United States has experienced two waves of deinstitutionalisation. The first wave began in the 1950s and targeted people with mental illness.[1] The second wave began roughly 15 years later and focused on individuals who had been diagnosed with a developmental disability (e.g. mental retardation).[1] Deinstitutionalisation continues today, though the movements are growing smaller as fewer people are sent to institutions.
Numerous social forces led to a move for deinstitutionalisation; researchers generally give credit to six main factors: criticisms of public mental hospitals, incorporation of mind-altering drugs in treatment, support from President Kennedy for federal policy changes, shifts to community-based care, changes in public perception, and individual states' desires to reduce costs from mental hospitals.[1]
Criticisms of public mental hospitals[edit]
The public's awareness of conditions in mental institutions began to increase during World War II. Conscientious objectors (COs) of the war were assigned to alternative positions which suffered from manpower shortages.[1] Around 2,000 COs were assigned to work in understaffed mental institutions.[1] In 1946, an exposé in Life magazine detailed the shortfalls of many mental health facilities.[1] This exposé was one of the first featured articles about the quality of mental institutions.[1]
Following WWII, articles and exposés about the mental hospital conditions bombarded popular and scholarly magazines and periodicals. The COs from the 1946 Life exposé formed the National Mental Health Foundation, which raised public support and successfully convinced states to increase funding for mental institutions.[1] Five years later, the National Mental Health Foundation merged with the Hygiene and Psychiatric Foundation to form the National Association of Mental Health.
During WWII, it was found that 1 out of 8 men considered for military service was rejected based on a neurological or psychiatric problem.[1] This increased awareness of the prevalence of mental illnesses, and people began to realize the costs associated with admission to mental institutions (i.e. cost of lost productivity and of mental health services).[1]
Since numerous individuals suffering from mental illness had served in the military, many began to believe that more knowledge about mental illness and better services would not only benefit those who served but also national security as a whole.[1] Congress passed the National Mental Health Act of 1946, which created the National Institute of Mental Health (NIMH). NIMH was pivotal in funding research for the developing mental health field.[1]
Pharmacotherapy[edit]
During the 1950s, new drugs became available and were incorporated into treatment for the mentally ill. The new drugs effectively reduced severe symptoms, allowing the mentally ill to live in environments less stringent than institutions, such as half-way houses, nursing homes, or their own homes. Drug therapy also allowed many mentally ill to obtain employment.[1]
President Kennedy[edit]
In 1955, the Joint Commission on Mental Health and Health was authorised to investigate problems related to the mentally ill. President John F. Kennedy had a special interest in the issue of mental health because his sister, Rosemary, had been lobotomised at the age of 23 at the request of her father.[1] Shortly after his inauguration, Kennedy appointed a special President's Panel of Mental Retardation.[1] The panel included professionals and leaders of the organization. In 1962, the panel published a report with 112 recommendations to better serve the mentally ill.[1]
In conjunction with the Joint Commission on Mental Health and Health, the Presidential Panel of Mental Retardation, and Kennedy's influence, two important pieces of legislation were passed in 1963: the Maternal and Child Health and Mental Retardation Planning Amendments, which increased funding for research on the prevention of retardation, and the Mental Retardation Facilities and Community Mental Health Centers Construction Act, which provided funding for community facilities that served people with mental disabilities.[1] Both acts furthered the process of deinstitutionalisation.
Shift to community-based care[edit]
In general, professionals, civil rights leaders, and humanitarians saw the shift from institutional confinement to local care as the appropriate approach.[1] The deinstitutionalisation movement started off slowly but gained momentum as it adopted philosophies from the Civil Rights Movement.[1] During the 1960s, deinstitutionalisation increased dramatically, and the average length of stay within mental institutions decreased by more than half.[1] Many patients began to be placed in community care facilities instead of long-term care institutions.[1]
Changing public opinion[edit]
While public opinion of the mentally ill has improved somewhat, it is still often stigmatised. Advocacy movements in support of mental health have emerged.[1] These movements focus on reducing stigma and discrimination and increasing support groups and awareness. The consumer or ex-patient movement, began as protests in the 1970s, forming groups such as Liberation of Mental Patients, Project Release, Insane Liberation Front, and the National Alliance on Mental Illness (NAMI).[1]
Many of the participants consisted of ex-patients of mental institutions who felt the need to challenge the system's treatment of the mentally ill.[1] Initially, this movement targeted issues surrounding involuntary commitment, use of electroconvulsive therapy, anti-psychotic medication, and coercive psychiatry.[1] Many of these advocacy groups were successful in the judiciary system. In 1975, the United States Court of Appeals for the First Circuit ruled in favour of the Mental Patient's Liberation Front of Rogers v. Okin,[1] establishing the right of a patient to refuse treatment.
A 1975 award-winning film, One Flew Over the Cuckoo's Nest, sent a message regarding the rights of those committed involuntarily. That same year, the U.S. Supreme Court restricted the rights of states to incarcerate someone who was not violent. This was followed up with a 1978 ruling further restricting states from confining anyone involuntarily for mental illness.
NAMI successfully lobbied to improve mental health services and gain equality of insurance coverage for mental illnesses.[1] In 1996, the Mental Health Parity Act was enacted into law, realizing the mental health movement's goal of equal insurance coverage.
In 1955 for every 100,000 US citizens there was 340 psychiatric hospital beds. In 2005 that number had diminished to 17 per 100,000.
Reducing costs[edit]
As hospitalisation costs increased, both the federal and state governments were motivated to find less expensive alternatives to hospitalisation.[1] The 1965 amendments to Social Security shifted about 50% of the mental health care costs from states to the federal government,[1] motivating the government[clarification needed] to promote deinstitutionalisation.
The increase in homelessness was seen as related to deinstitutionalisation.[27][28][29] Studies from the late 1980s indicated that one-third to one-half of homeless people had severe psychiatric disorders, often co-occurring with substance abuse.[30][31]
A process of indirect cost-shifting may have led to a form of "re-institutionalisation" through the increased use of jail detention for those with mental disorders deemed unmanageable and noncompliant.[32][33] When laws were enacted requiring communities to take more responsibility for mental health care, necessary funding was often absent, and jail became the default option,[34] being cheaper than psychiatric care.[32]
In summer 2009, author and columnist Heather Mac Donald stated in City Journal, "jails have become society's primary mental institutions, though few have the funding or expertise to carry out that role properly... at Rikers, 28 percent of the inmates require mental health services, a number that rises each year."[35]

South America[edit]

In several South American countries,[specify] the total number of beds in asylum-type institutions has decreased, replaced by psychiatric inpatient units in general hospitals and other local settings.[7]

See also[edit]

General:

References[edit]

  1. ^ Jump up to: a b c d e f g h i j k l m n o p q r s t u v w x y z aa ab ac ad Stroman, Duane (2003). The Disability Rights Movement: From Deinstitutionalization to Self-determination. University Press of America. 
  2. ^ Jump up to: a b Eisenberg, Leon; Guttmacher, Laurence (August 2010). "Were we all asleep at the switch? A personal reminiscence of psychiatry from 1940 to 2010". Acta Psychiatrica Scandinavica 122 (2): 89–102. doi:10.1111/j.1600-0447.2010.01544.x. PMID 20618173. Retrieved 15 March 2012. 
  3. Jump up ^ Mosher, Loren (1999). "Letter Mosher to Goodwin". Psychology Today 32 (5): 8. 
  4. Jump up ^ Szasz, Thomas (2007). Coercion as cure: a critical history of psychiatry. Transaction Publishers. p. 34. ISBN 0-7658-0379-8. 
  5. Jump up ^ Torrey, E. Fuller (2010 Summer). "Documenting the failure of deinstitutionalization.". Psychiatry 73 (2): 122–4. PMID 20557222. 
  6. Jump up ^ Wright D (April 1997). "Getting out of the asylum: understanding the confinement of the insane in the nineteenth century". Social History of Medicine 10 (1): 137–55. doi:10.1093/shm/10.1.137. PMID 11619188. 
  7. ^ Jump up to: a b c d e f g h Fakhourya, W; Priebea, S (August 2007). "Deinstitutionalization and reinstitutionalization: major changes in the provision of mental healthcare". Psychiatry 6 (8): 313–316. doi:10.1016/j.mppsy.2007.05.008. 
  8. Jump up ^ Kornblum, William (2011). Mitchell, Erin; Jucha, Robert; Chell, John, eds. Sociology in a Changing World (9th ed.). Cengage learning. p. 195. ISBN 978-1-111-30157-6. 
  9. Jump up ^ Rochefort, D.A. (Spring 1984). "Origins of the "Third psychiatric revolution": the Community Mental Health Centers Act of 1963". Journal of Health Politics, Policy and Law 9 (1): 1–30. doi:10.1215/03616878-9-1-1. PMID 6736594. 
  10. Jump up ^ Scherl, D.J.; Macht, L.B. (September 1979). "Deinstitutionalization in the absence of consensus". Hosp Community Psychiatry 30 (9): 599–604. PMID 223959. 
  11. Jump up ^ Mac Suibhne, Séamus (7 October 2009). "Asylums: Essays on the Social Situation of Mental Patients and other Inmates". British Medical Journal 339: b4109. doi:10.1136/bmj.b4109. 
  12. Jump up ^ Torrey, E. Fuller (1997). "Deinstitutionalization: A Psychiatric "Titanic"". Out of the Shadows: Confronting America's Mental Illness Crisis. John Wiley & Sons. Retrieved 21 October 2011.  excerpted by Frontline (pbs.org).
  13. Jump up ^ Fuller, Torrey.E. "Deinstitutionalization: A Psychiatric "Titanic"". 
  14. Jump up ^ Torrey, E. Fuller (2008). The insanity offense: how America's failure to treat the seriously mentally ill endangers its citizens (1st ed.). New York: W.W. Norton. ISBN 978-0-393-06658-6. 
  15. Jump up ^ Teplin, Linda A; McClelland, Gary M; Abram, Karen M; Weiner, Dana A (August 2005). "Crime Victimization in Adults With Severe Mental Illness: Comparison With the National Crime Victimization Survey". Archives of General Psychiatry 62 (8): 911–21. doi:10.1001/archpsyc.62.8.911. PMC 1389236. PMID 16061769. 
  16. Jump up ^ Petersilia, Joan R (2001). "Crime Victims With Developmental Disabilities: A Review Essay". Criminal Justice and Behavior 28 (6): 655–94. doi:10.1177/009385480102800601. 
  17. Jump up ^ Steadman, Henry J; Mulvey, Edward P.; Monahan, John; Robbins, Pamela Clark; Appelbaum, Paul S; Grisso, Thomas; Roth, Loren H; Silver, Eric (May 1998). "Violence by people discharged from acute psychiatric inpatient facilities and by others in the same neighborhoods". Archive of General Psychiatry 55 (5): 393–401. doi:10.1001/archpsyc.55.5.393. PMID 9596041. 
  18. Jump up ^ Sirotich, F. (2008). "Correlates of Crime and Violence among Persons with Mental Disorder: An Evidence-Based Review". Brief Treatment and Crisis Intervention 8 (2): 171–94. doi:10.1093/brief-treatment/mhn006. 
  19. Jump up ^ Stuart, H. (June 2003). "Violence and mental illness: an overview". World Psychiatry 2 (2): 121–4. PMC 1525086. PMID 16946914. 
  20. Jump up ^ Taylor, P.J.; Gunn, J. (January 1999). "Homicides by people with mental illness: Myth and reality". Br J Psychiatry 174 (1): 9–14. doi:10.1192/bjp.174.1.9. PMID 10211145. 
  21. Jump up ^ Solomon, Phyllis L.; Cavanaugh, Mary M.; Gelles, Richard J. (January 2005). "Family violence among adults with severe mental illness: a neglected area of research". Trauma, Violence, & Abuse 6 (1): 40–54. doi:10.1177/1524838004272464. PMID 15574672. 
  22. Jump up ^ "Report of the Confidential Forum for Former In-Patients of Psychiatric Hospitals". Department of Internal Affairs, New Zealand Government. June 2007. 
  23. Jump up ^ Priebe, Stefan; Badesconyi, Alli; Fioritti, Angelo; Hansson, Lars; Kilian, Reinhold; Torres-Gonzales, Francisco; Turner, Trevor; Wiersma, Durk (January 2005). "Reinstitutionalisation in mental health care: comparison of data on service provision from six European countries". British Medical Journal 330 (7483): 123–6. doi:10.1136/bmj.38296.611215.AE. PMC 544427. PMID 15567803. 
  24. ^ Jump up to: a b Russo, Giovanni; Carelli, Francesco (April 2009). "Dismantling asylums: The Italian Job". London Journal of Primary Care. 
  25. Jump up ^ Burti L. (2001). "Italian psychiatric reform 20 plus years after". Acta psychiatrica Scandinavica. Supplementum 104 (410): 41–46. doi:10.1034/j.1600-0447.2001.1040s2041.x. PMID 11863050. 
  26. ^ Jump up to: a b Tansella, M. (November 1986). "Community psychiatry without mental hospitals – the Italian experience: a review". Journal of the Royal Society of Medicine 79 (11): 664–669. PMC 1290535. PMID 3795212. 
  27. Jump up ^ Scanlon, John (2 October 1989). "Homelessness: Describing the Symptoms, Prescribing a Cure". Backgrounder (Heritage Foundation). 729. 
  28. Jump up ^ Rubin, Lillian B. (Fall 2007). "Sand Castles and Snake Pits: Homelessness, Public Policy, and the Law of Unintended Consequences". Dissent. 
  29. Jump up ^ Friedman, Michael B. (8 August 2003). "Keeping The Promise of Community Mental Health". The Journal News. [dead link]
  30. Jump up ^ McQuistion, Hunter L.; Finnerty, Molly; Hirschowitz, Jack; Susser, Ezra S. (May 2003). "Challenges for psychiatry in serving homeless people with psychiatric disorders". Psychiatric Services 54 (5): 669–76. doi:10.1176/appi.ps.54.5.669. PMID 12719496. 
  31. Jump up ^ Feldman, S. (June 1983). "Out of the hospital, onto the streets: the overselling of benevolence". Hastings Center Report 13 (3): 5–7. doi:10.2307/3561609. JSTOR 3561609. PMID 6885404. 
  32. ^ Jump up to: a b Torrey, E. Fuller; Stieber, Joan; Ezekiel, Jonathan; Wolfe, Sidney M.; Sharfstein, Joshua; Noble, John H.; Flynn, Laurie M. (1992). Criminalizing the Seriously Mentally Ill: The Abuse of Jails as Mental Hospitals. A joint report of the National Alliance for the Mentally Ill and Public Citizen's Health Research Group. ISBN 0-7881-4279-8. Retrieved 12 November 2010. 
  33. Jump up ^ Domino, Marisa Elena; Norton, Edward C.; Morrissey, Joseph P.; Thakur, Neil (October 2004). "Cost Shifting to Jails after a Change to Managed Mental Health Care". Health Serv Res 39 (5): 1379–401. doi:10.1111/j.1475-6773.2004.00295.x. PMC 1361075. PMID 15333114. 
  34. Jump up ^ Roche, Timothy (10 July 2000). "The Chief and His Ward". Time Magazine. Retrieved 12 November 2010. 
  35. Jump up ^ Mac Donald, Heather. "The Jail Inferno". City Journal. Retrieved 27 July 2009. 

Bibliography[edit]

Further reading[edit]

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